The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
NOTICE OF ANNUAL GENERAL MEETING to be held in conjunction with the CdLS Conference in Canberra on SATURDAY 16th November 2019 at the Pavilion on Northbourne, 242 Northbourne Avenue, Dickson, ACT, 2602, Australia at 3.30pm. All welcome.
At this meeting all positions on the committee will be vacated and a vote will be taken by financial members of the CdLS Association to fill management roles for the following year.
Arrangements can be made if you wish to attend by phone or Skype. If you wish to nominate for a position on the Committee you must be financial. Annual membership is $25 per family. Please go to Donations page.
Email us here for nomination forms and/or so we can arrange links for you to attend remotely.full details
CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS. The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.
The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations. We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.